This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


his name in the sand

so, i heard about this site while i was pregnant with jonathan. it's a beautiful idea; your baby's name memorialized in a picture-perfect little piece of heaven (otherwise known as a white-sand beach in western australia during sunset.) but when the time came for me to make a request, the photographer was on a break after the birth of her own child. and then there was a waiting list 6 months long or something like that. 

so when i heard via another baby loss blogsite that she was taking names again, i jumped on it right away. and just a few days later, it was done!

you have to click on the link since i don't have the rights to the photograph, but you will be glad you did. the pictures are so beautiful. spend sometime looking around at the other sunsets and you too will agree that this magnificent beach must be a little piece of heaven.

but for me, my little piece of heaven today is seeing my sweet boy's name written out in the sand. there's just something about seeing or hearing his name.  that's my jonathan. 

we miss him so.


  1. That is the most beautiful memorial I have ever seen. Awe and wonder. It's as if God designed this preview of Jonathan's vistas for you to share.

    How are you? Is Evan growing at a wild rate?