This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.



out of the blue today, i received a couple of messages reaffirming just how much my little jonathan's life has touched others in profound, significant ways.

it's been five months that he's been gone, and i'm still hearing these things. from people i don't know (or hardly know.)

it's simply amazing. humbling. encouraging.

thank you so much for letting me know how much my son's life means to you.

thank you for allowing me the opportunity to feel like a proud parent.

but mostly, thank you for reminding me that we serve an awesome God who can truly use any life for His glory, even a life that only lasted 40 minutes.


  1. Such blessings, I bet! With so many of these little ones' lives, I always think of what a mighty impact they make even in the brevity of their lives and just think that's amazing.
    Glad you were able to be reminded of God's miracle in the precious life of Jonathan!

  2. I absolutely know what you mean! I am constantly overjoyed at the impact our sweet Caroline's life is having on so many people! I enjoy reading your blog, and it has been an inspiration to me during our very similar journey. I know your precious Jonathan, and my little Caroline, are dancing with the angels in Heaven :)!!!!