This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


baby evan update

yesterday, greg and i breathed a big sigh of relief after our appointment with our specialist, dr. thorp at sacred heart. not that we had too much to worry about since our baby boy has already pretty much been declared "healthy" a couple of times previously. however, at this appointment, evan would be big enough to really study his anatomy for more detail.  for me, anytime we visit the specialist, i just can't help but think back to jonathan and those bittersweet appointments.  while it was always wonderful to see him up on the big screen moving, sucking his thumb, and hiccupping...acting like a normal was also heartbreaking to see all of his problems and to be reminded that he basically had no chance of survival after birth.  those difficult memories come sneaking around when it's time to make the trip to the specialist.  even though dr. thorp and his staff are always so wonderful and kind to us, it's never a completely enjoyable event.  and now there's always the "what-if" factor with evan.  so, until this baby is safe in my arms, breathing on his own, nursing like a champ, and making huge messes in his diaper will i finally relax. (well, as much as you can relax with a newborn and a busy toddler in the house!)

we arrived at the appointment a little nervous and armed with a huge list of questions to ask about evan and about the pregnancy. most of those questions were based on the abnormalities either jonathan or i experienced the last time. basically, i just needed to be told that every detail of this pregnancy was normal and that evan had no issues that would make me wonder otherwise.  we had prayed for good news at this appointment for months.  so as we watched the ultrasound screen with big smiles and made compliments of our son that only adoring parents would make ("look at those cute chubby cheeks!"), our anxiety melted away and each question was answered to our satisfaction and reassurance.

so here's the latest with evan:  he weighs approximately 2.5 pounds (61st percentile) and has long arms and legs. he has the most adorable profile and chubby cheeks (if i do say so myself!) the ultrasound tech even pointed to hair sticking up off of his scalp! he is already in the head-down position, which i had figured since i have been feeling baby feet up near my ribs lately. he smacked his lips and sucked his thumb during the ultrasound, too. he is also "still a boy"...i had them check again since a friend of mine just delivered a girl after being told for months it was a boy!  in summary, evan is - as the specialist called him - beautiful and perfect. ahhhhh. that's the sound of weight lifting off of our shoulders!  we are so thankful for this news!

as far as my health is concerned, everything looks good that affects the baby. my weight gain and blood pressure is perfect. the only minor glitch is that i have a cyst on my thyroid, but so far it has not affected the baby. there is really nothing that can be done for it until after delivery. the cyst is probably pregnancy-related (i have been pregnant 3 of the last 4 years...hmmm) and will hopefully disappear on it's own in the next few months.  it's been mostly an irrelevant issue for me.

emotionally, i feel like i have finally gotten to a point where i have mentally separated my boys' pregnancies. especially after today. over the past couple of months, i have been able to bond with evan as evan and not compare him constantly to jonathan.  the only time i still compare is at doctors' visits.  i don't stress anymore over not feeling him move after a couple of hours, and i don't stress over the fact that i have yet to hear evan's heartbeat with my home doppler.  i've begun to make preparations mentally and practically speaking that we will be bringing this baby home. even kate is getting excited over her baby brother that will be arriving sometime around christmas.

so here's evan's growth progress over the past month or so and a sweet profile pic of his face...

21 weeks

22 weeks

23 weeks...Greg says I look like Barney the Dinosaur here!  :)

24 weeks

26 weeks
26 weeks and 4 days old...isn't he adorable???  :)


  1. Lauren,
    I am so happy to hear that you and Evan are both perfectly healthy! I know that this latest visit must be a huge burden off of your shoulders. Even though I have had two healthy pregnancies before, I have wondered what it would be like if I got pregnant again and had another 'normal' pregnancy. I will never take it for granted again. Lifting you all up in prayer as the day draws nearer that you meet your precious son. Also, thinking of you and sweet Jonathan as a very important milestone is around the corner. Please know I am here if you need to chat during the next couple of weeks. -Katie

  2. He's beautiful. :) I saw Dr. Thorp when I was pregnant with Blake too. And don't stress about not hearing the heart beat with the doppler, I could never find the heart beat either! Started to make me nervous. I think the day before I delivered I MIGHT have faintly found it. Haha! But I'm so glad to hear that things are going great. I can't wait to be pregnant again, but I think I'll be a little nervous as you were/are, I just don't want a repeat of what happened to Blake (health wise). It's always in the back of my head, but I definitely want more kids.

  3. Such wonderful news! He is adorable :) Ellie is big, too (2lb 9oz--66 percentile) and has hair! Such perfect little creations! Continuing to pray for you xoxo

  4. Evan is precious! And you are beautiful--love the glow:)

  5. You look beautiful!!

  6. He IS adorable!!!! I love, love, love his profile!

    And aren't you gorgeous? Love the wonderful updates and can't wait for more pictures!!!!