This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


baby ailah

one of the many blessings that has come from jonathan's life is that i get to "meet" wonderful people, either in person or online, who happen share the common bond of a fatal prenatal diagnosis or the loss of a baby. 

my new friend darlene is expecting her first baby, a girl named ailah (pronounced "eye-lah") who has been prenatally diagnosed with trisomy 18.  darlene and i exchanged emails before meeting at our recent run for new life 5K.  there, we got to spend some time sharing about our babies and encouraging one another.  ailah has a very special mommy.

ailah is scheduled to be born in just a few days.

please pray that all goes well with ailah's delivery and that the family gets to spend some precious moments with their new baby girl.  so far, ailah seems to be doing wonderfully, in spite of her diagnosis.  please pray for abundant peace and comfort for this family in advance of what they are likely to experience, whether it be minutes or several days, after the birth of their daughter. 

"Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me." ~Psalm 23:4

"Do you not know? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." ~Isaiah 40:18-31

"The LORD is good, a refuge in times of trouble. He cares for those who trust in him" ~Nahum 1:7

i will post an update on baby ailah as soon as i get word.  thank you for praying.

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