This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.

3.08.2010

count it all joy

today, march 8th marks five months since we lost jonathan.  (it also marks the day his life began a year ago.  maybe that's TMI for most of you, sorry.)

five months seems like a long time from where i stand right now.  i know that grief takes all sorts of forms, and here at five months after losing jonathan, i guess what i feel mostly these days is just weariness.

while there's comfort in life going back to normalcy after a loss, there's also some grief that it has gone back to normal, whatever normal is these days.  life just moves on so quickly, without a second thought to those it leaves behind.   i feel sad that jonathan is being left behind.  there's only so much i can do for him with him not being here.  the parent in me wants to care for him in tangible ways, too, which of course i can't.  it's a bit draining at times.

so i stepped it in to high gear with kate.  i got her potty trained in no time.  i've been taking her to all sorts of playdates.  i've been patiently obliging her requests for "play with me, mommy" even when i don't feel like it.  i've been giving her lots of extra "snuggle time" when she wants it, where she wants it.  i've been making sure she's seeing me smile more than not.  basically, i've been spoiling her with love but still maintaining order and discipline in her day.  i feel that i can't let my grieving for jonathan, which tends to show up in my life as impatience, interfere with doing the best i can with kate.  maybe what i've described sounds easy.  but for me, it's draining.

also quite draining has been five months of grieving for jonathan and missing him.  he's always in the back of my mind, no matter what i'm doing or what i'm thinking about.  i could be in the middle of laughing at something i find hilarious, and yet the sadness of jonathan being gone is there. 

it's been five months of fighting those thoughts that come to remind me that "by now", if he hadn't had that extra chromosome, he would be laughing.  rolling over. sitting up.

it's been five months of trying to keep the memory of him fresh; for me, for my family, for anyone who cares.

it's been five months (and much longer) of experiencing lesser trials that have stemmed from the greater trial of carrying and then losing jonathan, such as friendships being strained and lost, the reappearance of the elephant in the roompublic negative reactions to our story, and an occasional sense of feeling alone or out of place, to name a few.

it's been five months of daily submission to the hard truth that God's plan to take him was better than my plan to keep him.

it's been five months of meditating on some very deep theological matters that, quite honestly, i have neither the spiritual maturity nor brain capacity to make much sense of any of it.

and on top of it all, God's been awfully quiet with me lately.  or maybe, i just can't hear Him right now.   which adds to the weariness, since the awareness of God's presence in our lives during my pregnancy and the months following had been extremely comforting.

yet, i do realize that all of these things i write about are not hidden from God, since He knows my every thought and prayer.  within a few days of voicing my weariness about everything to Him, He answered by leading me back to the scriptures that remind me that:

"The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged." ~Deuteronomy 31:8

"And surely I am with you always, to the very end of the age." ~Matthew 28:20

and then yesterday at church, we had a very powerful time of worship that focused on the verses James 1:2-4 that says...

"My brethren, count it all joy when you fall into various trials, knowing that the testing of your faith produces patience.  But let patience have its perfect work, that you may be perfect and complete, lacking nothing."

and we sang the song, "count it all joy":

Lord I’ll count it all joy
When my troubles
Close me in on every side
 Lord, I’ll count it all joy
When this road of faith
Runs through the darkest night

For I know You’re at work in me
Yes I know You’ll provide
All the grace I need

You have always been my Rock
I will trust You forever, forever
You have never failed me God
I will trust You forever, forever

Lord I’ll count it all joy
When the weight of sorrow
Drives me to my knees

Every heartache and pain
In Your mighty hands
Is forming Christ in me

And I know that Your Word is true
Yes, I know every trial
Will only prove

Who can separate us
From You and Your great love

it was at that moment, i realized that although the weariness i was feeling was very real and possibly even justified, my attitude needed to be adjusted yet again.  i was not counting it all joy.

and then, we sang the song, "blessed be your name."  it probably wasn't a coincidence that this song was also performed at jonathan's funeral.

Blessed Be Your Name
In the land that is plentiful
Where Your streams of abundance flow
Blessed be Your name

Blessed Be Your name
When I'm found in the desert place
Though I walk through the wilderness
Blessed Be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

Blessed be Your name
When the sun's shining down on me
When the world's 'all as it should be'
Blessed be Your name

Blessed be Your name
On the road marked with suffering
Though there's pain in the offering
Blessed be Your name

Every blessing You pour out
I'll turn back to praise
When the darkness closes in, Lord
Still I will say

Blessed be the name of the Lord
Blessed be Your name
Blessed be the name of the Lord
Blessed be Your glorious name

You give and take away
You give and take away
My heart will choose to say
Lord, blessed be Your name

we finished singing and one of the elders stood up to pray and he began by saying that while the Lord does choose to give and take away, He doesn't take away Jesus.  i didn't hear any more of the prayer because i knew that that was the cure for my attitude adjustment.
 
this whole time i have been mostly concerned with doing my best not to take kate for granted in the midst of my loss of jonathan, but i had in fact taken for granted the value of what i have been given through the gift of Christ.  through Christ, i have access to all of God's promises.  i have unconditional love from the Father.  He gives me the strength to overcome any loss.  He also reminds me that : "Whatever was to my profit I now consider loss for the sake of Christ.  What is more, I consider everything a loss compared to the surpassing greatness of knowing Christ Jesus my Lord" ~Phillipians 3:7-8

i realize that lately, i have not been able to experience joy because i have focused too much on what i have lost, and not enough of what i have gained.  yes, there actually was gain from losing jonathan.  more than what i can comprehend in my limited abilities.  but i have seen enough to know that the gain is significant.  therefore, i haven't had a problem counting some of it joy, but i know it takes a greater faith to count it all joy. 

counting it all joy includes being pregnant with a sick baby.  counting it all joy includes losing friends and being publicly ridiculed because of the stance you take for your faith.  counting it all joy includes holding your baby while he dies.  counting it all joy includes living the rest of your life with a (insert name here)-sized hole in your heart.  the faith i want is the faith that still counts it all joy. 

therefore:

"Let us lay aside every weight, and the sin which so easily ensnares us, and let us run with endurance the race that is set before us, looking unto Jesus, the author and finisher of our faith, who for the joy that was set before Him endured the cross, despising the shame, and has sat down at the right hand of the throne of God." ~Hebrews 12:1-2

"Do not grieve, for the joy of the Lord is your strength." ~ Nehemiah 8:10

"You have made known to me the path of life; you fill me with joy in your presence, with eternal pleasures at your right hand." ~Psalm 16:11

6 comments:

  1. This was hard for me to read, so I imagine it wasn't easy for you to write.

    It is inspiring, as usual.

    I honestly and openly admit that I struggle still with counting it all as joy. There is no joy in the ache of arms.

    But, you are right in that the joy of the Lord is strength...and I think most days the only way I make it through things!

    I also have a lot of the same thoughts you have roaming around in my head. It doesn't surprise me at all that you have had negative reactions because we sadly live in a world that simply doesn't fully embrace and value the amazing and miraculous life God gives us and our babies. Praise God for your testimony!

    I've been reading a book recommended to me by Gregory Boyd called, "Is God to Blame? Moving Beyond Pat Answers to the Problem of Evil" and have really found some peace in it. It is solidly founded in Biblical scripture, and makes a lot of sense. It still leaves me with some things that as you said I don't necessarily have the brain capacity or spiritual maturity for, but it definitely has made me think about things. I'd love to send you a copy and see what you think. Let me know!

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  2. thank you for sharing your heart lauren! you inspire me!!

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  3. Lauren,
    We've never met, but your courageous honesty makes it seem like we're old friends. I guess it's because I can relate to and love the way you are letting God speak to, address, move in and heal the most wounded parts of your heart, regardless of how that wounding is currently being expressed in your life. Keep bravely letting Him in. And thank you for letting me in a little, too.
    Your friend in Jesus,
    Joy

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  4. Thank you, Lauren. I needed those words this week. Peace friend.

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  5. Dearest Lauren ! I am so grateful for your faith and your trust in God's word and the way you renew your mind with His word ! You share and it gives me great encouragement as I desire to listen to the Lord our God in His word <>< rather to my own feelings <>< the people around me who do not seek the Lord for His counsel in all of their circumstances <>< regardless to how small the matter <>< I love you Lauren <>< even though we have not spend any time together <>< I hear the love of Christ in your voice as you write and He is going to keep you and He is going to help you and He is going to heal your hurt and always will <>< I love Him for guiding you so graciously in His word because His word is your life and His word is healing and His word is sufficient for you in your trial <>< God is revealing Himself to you and HIS word is your foundation and His word is TRUTH <>< I did not go through anything like your trial but I did have three babies that I did not get to raise on earth due to God's will for them to be with Him <>< I remember not understanding but I was not born again at the time and it is comforting to know that God is sovereign and like yourself I put my TRUST completely in HIM . I prayed Ephesians 3:14-21 the other day and it was so thrilling for God to show me something I never saw before <>< Now to Him who is able to do far more abundantly beyond all that we ask or THINK, according to the POWER that works in us, to HIM be the glory in the church and in Christ Jesus to all generations forever and ever . Amen <>< I was so blessed when HE emphasized more than any person THINKS and it was so comforting because GOD is bigger than we can THINK and He does more and knows more and is more than we can THINK so I agree with HIM :-) I will be praying those verses for us this weekend Lauren every one is rich with application from GOD who speaks to us in the midst of all our hurts HE cares for us <>< There is none like HIM <>< I thank God for you and your love for HIM benefits me Psalm 103: 1-2

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  6. very hard for me to read. you wrote this the day after my baby boy was born. i fell in love with kevin from the minute i saw & held him. i know you must have experienced that with jonathan too. i just can't imagine the grief you have experienced since he died. you know how people who survive an accident when they lost a loved one in that same accident have "survivor's guilt." that's kinda how i feel when i read this. i feel guilty that my son is still alive. granted, we aren't guaranteed our next breath, so i know death is as much a reality as life. but it's so hard to imagine your loss, lauren. i love you so much. i'm so thankful that you have life in Jesus. you have the Father who gave his only Son. and you have his Spirit as a comforter & truth-teacher. i know as much as you have cried out, God has comforted in some way. i love you, lauren. thanks for sharing your heart & walk. God is truly using all of it. hugs to you. ~lindy~

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