This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


our gift from God

that first week, it was very hard for me to sleep. i saw the numbers 3:30 on my alarm clock almost every night. my brain was going full speed ahead while my body was completely worn out.

those nights were the hardest.

it was during one of those nights that i went over boy names in my head. greg and i knew we needed a name with significant meaning because this was going to be a very special baby. we didn't have a book of names yet to look anything up, so we hadn't talked much about names we liked yet.

but as i lay there, a name literally popped in my head from nowhere: "what about Jonathan?" i liked the name a lot, but it wasn't necessarily a name i would have picked out originally. i thought about jonathan of the Bible: he was a young man of courage, strength, and determination who looked to and relied on God. i decided to look the meaning of the name up on the internet first thing in the morning.

so imagine my pleasant surprise when i found that the name means "Gift from God." i can't help but believe that this name was meant to be.

we are still working on a middle name.


  1. Lauren, your words on your blog are powerful, insightful, and full of faith. May God give you His perfect peace as you journal this journey He has you on.

  2. Lauren, I will be praying for your family and especially for Jonathan! My heart is breaking for you. Some friends of mine from high school had a little boy about a year ago who had Trisomy 18. If it is any encouragement you can check out her blog:
    I know that the Lord will carry you through this!

  3. Lauren, thank you for your unselfish gift to all who read your words of hope. Thank you for sharing Jonathan with all of us and for placing him in Father's loving hands. May He who began this good work strengthen your heart and fill you and Greg to over flowing as your journey this path. If you need help in any form please know it would be an honor to walk alongside you, Greg and Kate.