This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


sad wake-up call

i received sad news this week from a family who had previously contacted me through the "living with trisomy 13" website: the T13 baby they were expecting (and due with a week before jonathan is due) has already been born @ 23 weeks. it has been a very sad wake-up call for me. i guess i just expect the Lord to grant us our request that jonathan not be born before 36 weeks. we are not ready nor prepared to lose our precious boy before then. please continue to pray for this for us. however, we realize that God's timing is perfect and are submitted to that. please also pray for this family. i don't have permission to name them, but God knows who they are.

last night for the first time, jonathan snuggled up to the very top of my belly so that i could actually feel his little body. he seems to fit entirely into my hand. it was a very sweet time for me to love on him.

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