This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.

7.23.2009

the visit with our specialist


yesterday, we drove to pensacola for our follow-up with the specialist. the day for the appointment snuck up on me. normally, i would count down the days for an ultrasound, but i felt a little disengaged for this one. i was having a tug-of-war with my emotions: one moment i would feel thankful and the next, defeated. i felt that unless a miracle had occurred and our son was going to be found completely healthy, i was just going to be reminded that i was pregnant with a baby who would not survive. i wanted to feel excited to see jonathan and soak up the moment, but there was still a heaviness in the reality. thankfully, the very moment i saw my baby up on the big ultrasound screen, i melted. i became a proud mommy, watching my baby boy kick and move and suck his thumb. he was perfect. and i couldn't take my eyes off of him during the hour-long scan.

jonathan has grown so much in the 4 weeks since we last saw him. we learned he measured 20 weeks old (he's 21.5 weeks old) and he weighs 12 ounces. he also has managed to get into the head-down position, which is wonderful news! last time we saw him, he was breech and we were worried that he might stay that way, making for a more complex delivery.

the tech and doctor spent a long time studying jonathan's heart and listening to all the different valves and ventricles. our tense moment came when they listened to the heart beat. greg and i were a little shocked to hear the difference in the rhythm this time. 4 weeks ago, it sounded like a completely normal heart beat. this time, it sounded downright scary. the doctor acknowledged that there were several arrythmias, but that none of them were lethal in and of themselves. it was due to all of the enlarged holes between the arteries and the ventricles.

we left the visit very hopeful that jonathan has a great chance of making it to full term and even through delivery. thank you for your prayers already, and please continue to pray for this.

were were able to get lots of cute pictures of jonathan! he wasn't in the right position to get any good 4D shots, but we got plently of other good shots including some cute ones of his feet. i wasn't able to see his feet last time, so it was important to me to see them this time.

the first picture here makes me smile...he has the exact same spread-out big toe as kate did when she was born! we called it "the claw" for awhile, and she has since grown out of it:


and these are my favorite pictures: sucking his thumb!!




21 weeks along and counting!

8 comments:

  1. He is precious! I love that he has the same little feet as Kate. Huge blessings that he is growing and head down. Praising God for all He is doing and continuing to pray that you will be able to deliver Jonathan and hold your sweet boy in your arms. Love you!

    ReplyDelete
  2. I am so excited to see my nephew...he is so precious and i love him so much!

    ReplyDelete
  3. How beautiful he is nd how wonderful to capture him sucking his thumb! I am so happy that you were able to pull your spirit up and be thankful for the time and pictures! May God continue to bless you and lay a hand of peace upon you!! Much love to you :)

    ReplyDelete
  4. everyone who is called by my name, whom I created for my glory, whom I formed and made.
    Isaiah 43:2

    I will extol the Lord at all times; his praise will always be on my lips.
    Psalm 34: 1

    The righteous cry out, and the Lord hears them; he delivers them from all their troubles. The Lord is close to the brokenhearted and saves those who are crushed in spirit.
    Psalm 34: 17-18

    I am so glad that you got to see your sweet little boy today, thanks for sharing his precious picts with us!! He is for sure being created for God's glory, that is so evident :-)!!
    Lifting you and Greg up tonight, praying that God will give you peace and love each and every minute of the day!!

    ReplyDelete
  5. thank you for sharing these pictures of your precious little boy. the picture of him sucking his thumb is so sweet! continued prayers for you and greg. may God continue to grant you peace, love, and trust in His plans.

    ReplyDelete
  6. Catherine RodriguezJuly 24, 2009 at 12:48 PM

    Hola from Honduras!!!!! Lauren, you look beautiful!!!!! I love the photos of Jonathan and I know you will treasure each one ALWAYS! So great to see how he compares to Kate (like his feet). So neat and of course, the shot of him sucking his thumb. He is absolutely precious and I know he is bring tons of joy to you and Greg. We love the 4 of you very much and know we think and pray about you everyday!!!!!

    Love, Hugs & Kisses!!!!

    Ken, Cathy & Jenna

    ReplyDelete
  7. Suck beautiful pictures, Lauren! Thank you so much for sharing with us. The picture of him sucking his thumb is just precious! Love to you all!

    ReplyDelete
  8. Hey sweetie,

    Linda asked me to pray for you and I will do this. God is so good and your little boy is so cute. God is in the miracle making bussiness. My son was diagnosed with a disease two years ago and now he is perfectly normal. God has given us a miracle and we will share it with whoever needs a miracle. Here is my son's website if you need to see a miracle in action www.caringbridge.org/visit/justinfinch

    Your baby shows that a baby is full of life in his momma's womb. He is already a testimony kicking his leg and sucking his thumb.

    God bless you,

    Jennie Finch

    ReplyDelete