This is the story of our precious baby boy, who was diagnosed prenatally at
17 weeks with a fatal chromosome disorder called Trisomy 13. Although
Jonathan's condition is considered "not compatible with life", we desired to give
him every chance at life. Our prayer is that those who are touched by our story
are drawn to God, who is Life Himself. John 14:6

To start at the beginning of our story, click here.


today's newspaper article

our sweet jonathan was featured in a follow-up story in today's local newspaper. you can read it online here and i've included it below. it makes me sad to read it because i miss him so, so much...but we are incredibly thankful for his "legacy."

Parents had 40 minutes with baby Jonathan
Wendy Victora
Daily News

On Thursday, a baby was born.
His birth had been much anticipated, and more than a little feared.
With the beginning of life, would also come the end.
Of course, that’s how it is with all of us. From the minute we are born, we are moving toward death.
But instead of the hoped-for 70 or 80 years in between, Jonathan Tomaschko’s parents knew he would have only moments or hours. And he might not even have those.
God gave him 40. Forty precious minutes to spend with his mommy and daddy and other family members.
His “big” sister Kate, who isn’t even 2, said his name.
His mommy was “enamored” of him, as any mom would be.
Daddy wanted his picture taken with his baby boy and his baby girl.
Jonathan met his grandparents. As was the case throughout his prenatal months, Jonathan’s life was recorded on his parents’ blog,
A family friend did most of the posting on the first and last day of his life on earth.
Labor was induced around noon, she wrote. She asked readers to say prayers and wish the family peace. And to ask God to allow his parents, Lauren and Greg, to hold their precious baby before he died.
A later blog told us he’d been born. He had lived. During his short life, he gave great joy to those around him.
Jonathan’s life was marked by numbers.
At 17 weeks, his parents found out that he was a boy and that he might have something wrong with him.
Days later, they found out that he had Trisomy 13, a chromosomal defect. And that he had it in its most fatal form.
Incompatible with life, was the ruling. His parents chose that he would live every moment he had fully.
On Oct. 8, labor was induced.
At 7:16 he was born.
At 7:56, he died.
He weighed 4 pounds, 3 ounces.
He had blonde hair and the hands of a basketball player, according to the blog posted by a family friend.
That’s all we know. But it’s enough.
In Jonathan’s short life, he taught others to live theirs more fully.
From the Tomaschkos, we learned that it’s possible to proceed with great courage, even into the face of unimaginable loss.
That trusting in God doesn’t mean getting the outcome that you might have wanted.
That it is possible to find joy and meaning in even the most painful parts of our lives.
What an amazing legacy for a tiny boy to leave behind.
Thank you, Jonathan.
And thank you Lauren and Greg for sharing your son with us.


1 comment:

  1. Thank you for your story of your son. I was reminded of the birth and death of our own son, Elisha. He lived 16 weeks in the womb and then, for some reason which we still don't understand, God took him to heaven before us. He was delivered in a military hospital while the family was on a long TDY with me in Norfolk, VA. We were about to head home when my wife started spotting. We stopped at the hospital to make sure everything was okay, but when the doctor checked for a heart beat and then checked again with the ultrasound, our son had passed.

    The doctor recommended a D&C to remove our son, but before he could arrange for a room my wife delivered our son into my hands. I held him for several minutes without speaking. He was the length of my hand and nearly fully developed. And we cried because we would not have the opportunity to see him grow and laugh and talk and run.

    We asked what happened next. They said he would be disposed with medical waste. We asked instead if he could be transported back to Kansas where we could give him a funeral and a resting place. They agreed and so our son was shipped to Kansas and we got a plot for him to rest in. We had a small ceremony with our family and pastor. And we cried. And we praised God for giving us a reminder that life is fragile and that He loves us so much that even in loss he can comfort us and that we will be able to spend eternity with our son praising Him.

    Our son would have turned nine this year. We are so blessed because we have four healthy children. But we are also blessed because of Elisha.

    Thank you again for your story and the opportunity to share.